Despite the Plague (Blog #722)

Last night, before my dad and I went to the gym, I wrote about how my friend Marla said I was “very loyal” to this blog and how the worst thing a person could do would be tie me up in a room and keep me from posting for a day. I said, “NOOOOOO.” Then, for the first time since starting this blog almost two years ago, I forgot to hit “publish.” Ironic, I know. This morning Marla wrote and said, “I can’t find yesterday’s blog. Did someone kidnap you?” Thankfully, I told her, no. And I did write. I just spaced out and forgot to share it.

But I did share it this morning, and here it is.

For the last three weeks, I’ve had an off-and-on sinus infection. A couple days ago, I felt like a million bucks and was sure I had it beat. But then this morning I woke up full-blown sick with all the mucus. (And I didn’t even eat dairy yesterday.) Despite all my tricks and potions, I’ve continued to feel sick all day–tired, gross, disgusting. Additionally, my head hurts. It’s like the skin around my skull has shrunk, is shrinking. I’m doing my best not to whine here. These are just the facts.

Excuse me while I hack up a lung.

Despite The Plague, it’s been a pleasant day. Like, no one has died (that I know of). Actually, this morning my mom got some good news about her heart. A recent echocardiogram showed a potential problem, but today she found out it was “moderate” and not “severe.” As I understand it, this means medication and not surgery. So that’s good. Then this afternoon I did some writing research, which was fun, and my family and I went out to Western Sizzlin’ (giddy up), which was tasty. Then I took a nap and watched several episodes of Soap, an old sitcom I’ve been into lately that starred Katherine Helmond and Billy Crystal. Crystal’s role, Jodie Dallas, was television’s first openly gay character. Anyway, I laughed out loud tonight when one of the characters, Burt, a real ham, stuck his hand directly in a chocolate cake because he thought there might be a bomb in it. Perhaps you would have had to have been there. But my point is–you can be sick without being miserable.

Not that this is an easy thing to do. All day, when I haven’t been distracted, I’ve been worried that this sinus infection will never go away. That all the things I’ve been doing have just pissed it off and that it will never get better. Today my aunt said, “Have you tried a neti pot?” Oh my god, have I tried a neti pot! A thousand times I’ve tried a neti pot. This is the deal when I’m sick. It feels like I’ve TRIED EVERYTHING and that NOTHING WORKS. Of course, I know this isn’t true. After all, this is a big world with lots of solutions, and I’ve stumbled across some wonders before. So we’ll see what happens. My current plan is to give myself the weekend to be sick and gross. If I don’t improve, I can come up with a plan next week. I’m telling myself–

You don’t have to mount a defense this very instant.

Quotes from CoCo (Marcus)

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You can be weird here. You can be yourself.

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That Which Is Scary (Blog #236)

Currently it’s two in the morning, and Mom and Dad are in bed. The house is quiet, I’m at the kitchen table, and the most interesting thing I can find to talk about is the plant sitting next to me–the one my therapist told me to buy a couple months ago. Recently a new stem appeared. It’s tiny, but it’s taller than the others. The way its leaves are folded back, it reminds me of a rocket ship. To me it looks full of potential, and I wonder what will become of that new stem, haw far its leaves will spread out one day. And where did it even come from? I swear it wasn’t there five days ago. Honest to god, it’s like I’m sitting next to a miracle.

Today has been all over the place. I’m coughing less than yesterday, but I still feel like crap. There’s just no better way to say it. I know I was pretty pessimistic in yesterday’s blog, and some of that bad attitude leaked into today. Objectively I know that life will improve and everything isn’t all bad, but it certainly hasn’t felt that way. I’ve talked to my therapist about this before, and she says, “When you’re off in the body, you’re off in the mind.” To me this means I simply don’t have access to my best thinking when I’ve been sick for five weeks straight. So for now I’m trying to hang in there, to trust that things will look different after the storm has passed.

Since yesterday I wasn’t even trying, I consider this a big improvement.

I honestly am rather disgusted by the fact that one sinus infection has taken up so much space on this blog. I wish I had something else to talk about. That being said, I told a friend earlier tonight that sinus infections have been my constant teacher over the years, and this one has been no exception. Just when I think I’m trusting, patient, optimistic, and kind, all I need is a good sinus infection to bring me back to reality. But on a deeper level, being sick like this brings up all my emotional shit–all the icky feelings like “not good enough” and “despair” that have been making themselves at home and putting their feet on my table for decades.

You know how feelings can take over, like they own the damn place.

In terms of not feeling good enough, I imagine we all feel this way at times. After all, advertisers don’t exactly entice us to buy their products by suggesting we’re perfect the way we are. But I think the button that gets hit for me is deeper and goes back to having to grow up so fast when my dad went to prison. At the time I didn’t think it was a big deal to take over the house and keep going to school, even to stop going to church and stop eating pork when my family changed our religious beliefs. But I can see now that all of that was a huge deal. I did the best I could, but I really wasn’t up to the task emotionally. Not only was I in over my head, but I was also isolated because we’d made ourselves so different from everybody else.

Twenty years later, it still feels like I’m not up to the task. Well-meaning people make suggestions (Have you tried a Neti Pot?), and it feels like an accusation, something I’m not doing right. But earlier I was thinking about how I’d respond if a fifteen-year-old I knew were going through what I went through at that age–what I might say if he were giving himself a hard time–and my heart absolutely melted. So I’m trying to extend the compassion I’d feel for anybody else to myself, to realize that I’m doing best I can (damn it) and always have been.

In terms of feeling despair, this is something I’m just starting to unpack. It’s something my therapist and I have been talking about lately but that I haven’t discussed here because it feels so raw. But a few weeks ago I was talking about several things that happened–or rather, didn’t happen–when I was a teenager. These were things I got my hopes up about, like Dad being found innocent or, when he wasn’t, being let out of prison early. Anyway, I was telling my therapist that I often feel powerless, like there’s nothing I can do to make a situation better, and all of a sudden she got quiet. (She never gets quiet.) Then she said, “I just realized something that affects and changes everything else we’ve been talking about.”

“What?” I said.

“Hope is scary for you.”

Honestly, I haven’t exactly known what to do with this information, which, by the way, is correct. Brene Brown says that hope is information, and my therapist says I’ve been let down so many times over the years that I simply haven’t had the right data. Consequently, I’ve spent a lot of time reading about people who achieve their dreams or who overcome chronic health problems, but there’s always a part of me that doesn’t quite believe those things are possible. Well, maybe they’re possible for someone else, but not for me. “It’s too bad,” my therapist says, “since life is actually set up for you to succeed.”

Again, if some teenager in my improv class told me he was afraid to hope, I’d melt with compassion. If someone told me they were going through a storm, I’d say, “You’re going to make it. Things will look different when it’s over, but mostly because you’ll be different–stronger than you were before.” So I’m trying to take it easy on myself, to take both this sinus infection and my life one day at a time and not assume the worst. Things can get better–they’re already better than they used to be. Looking at the plant beside me, I’m reminded that I, too, am full of potential, capable of new growth at anytime. For surely if a plant is a miracle, then I am one too, ever ready to let go of that which is behind, turn my face toward the light, and hope again.

Quotes from CoCo (Marcus)

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When the universe speaks—listen.

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Learning to Breathe Again (Blog #151)

For the last hour I’ve been scrolling and scrolling through old photos hoping to come up with a blog idea. However, it’s been a long day, I’m exhausted, and all I can think is, No, that won’t work. But I told a good friend today that probably the best thing I’ve ever done–in my entire life–was to have sinus surgery, so when I saw pictures from the surgery, I thought, That might work. (One hour, and I’ve got a solid maybe.) This–it would appear–is the life of a writer. Doesn’t it sound glorious? Sign up now and you can live with your parents too!

But I digress.

For nearly two decades, I had multiple sinus infections a year. I know I’ve written about this before, but it was hell. For the longest time, I’d have an infection–marked by fatigue, colorful snot, and sometimes fever–once every six to twelve weeks. Maybe more often than that. At some point, I stopped counting. But it seems as if I have just as many memories being sick as I do being well. I was sick in high school the night Mom and Dee-Anne and I drove to Little Rock to see Les Mis. I could barely put my clothes on. I was sick probably half the times I went to Houston for an annual Lindy Hop convention. I was sick almost every Thanksgiving.

In high school I used to think that God was punishing me for–I don’t know–being a straight A student. I’d pray–and pray–and pray–and still wake up coughing up blood-colored snot. Before I knew what to call it, I’d tell my family, “I feel weak,” and my Dad would say that I was burning the candle at both ends. I’d think, I just need to slow down.

Over the years, I tried everything I knew to try. I took a ton of antibiotics, swore them off, took a ton more–with steroids. Had an allergic reaction, whatever. Alternatively, I ordered things off television, off websites. I saw a naturopathic doctor who suggested herbs for my immune system. I took so many herbs, drank so many teas. I looked into the emotional connection to sinus infections (crying inside). None of it solved the problem, but I did learn a lot. In fact, having constant sinus infections is one of the things that led me to Reiki, Chi Kung, and meditation. Again, none of it fixed them problem, but they’ve all added a multitude of benefits to my emotional, physical, and spiritual life. So I don’t consider everything a waste.

Except maybe the Neti Pot, that contraption you use to pour water in one nostril until it runs out the other. If I had a nickel for every time someone said, “Have you tried a Neti Pot?” I’d be set. YES, I have tried a fucking Neti Pot–it didn’t work.

Whenever I’d get sick–again–I’d get overwhelmed and think, I can’t do this anymore. Of course, I did, since I didn’t have much choice in the matter. Plus, things always look different in the morning. Which morning, I can’t say. But go through enough mornings, and things will look different. For me, I guess things started to turn around a few years ago when my primary care doctor suggested seeing an ENT (ear, nose, and throat doctor). Now there’s an idea! So that’s what I did–locally–and the doctor explained that 1) my septum was blocked, a lot, and 2) my sinuses weren’t draining. Basically, I always had an infection “on deck.” His recommendation? Surgery, to the tune of approximately $14,000 dollars.

Well, shit. I don’t have insurance.

Or $14,000.

Fast forward to just before this last Christmas, and I was living in Fayetteville, about to travel to New York City, and sick–again. So I called my ENT’s office to finally do something about it. I had insurance, and even though I had a high deductible, I didn’t care. I had to do something. Well, no one answered the phone. I’m sure you’ve been on hold before. So I hung up and called a clinic in Rogers (Mercy Ear, Nose, and Throat).

“Can you come next week?” they asked.

“Ugh. I’ll be out-of-state next week.”

“What about two hours from now? Can you come then?”

“I’ll be there.”

Y’all, I hate to say this because it was twenty freaking years, but it was worth the wait. I’ve never been treated so well by an entire group of medical professionals. I don’t intend for this to become a commercial, but everyone from start to finish was amazing. (Pick up your phone and order now.) But seriously, my doctor’s name was Chad (actually Dr. Chad Putman, but I try to keep it informal on the blog), and he paid attention, asked questions, then laid out a plan–drugs first, a CT scan, then possibly surgery. “I don’t want to jump the gun,” he said. So we took it step by step, and six weeks later, I was in an operating room.

By that time, Chad had explained that my previous doctor had been correct–my nose was blocked 80 percent on one side and 90 percent on the other. Part of my sinuses weren’t draining, which meant they were constantly “smoldering.” (Isn’t this fun to talk about?) But whereas the previous doctor had suggested three procedures, Chad suggested six in order to really open everything up. The day of the surgery–February 15–he told my parents, “We’ll treat him like family.”

Uh, I know we’re family and all, but my butt is hanging out of this gown.

Surgery itself was a breeze. The anesthesiologist came in the room where I was waiting with Mom and Dad and said, “I’m going to give you a cocktail.”

I said, “I like cocktails.”

Then they wheeled me back to the operating room, moved me to a different table, and that was it. The next thing I knew, I woke up back in my room with a sling around my nose to catch the blood. Later Mom said that I was repeating myself a lot. How’d it go? God, it’s bright in there. May I have my sunglasses?

Mom and Dad took care of me for a week. Looking back, it was sort of a trial run for my living with them now. For the first several days, I couldn’t breathe through my nose at all and slept in a chair. Per Chad’s instructions, I used a Neti Pot (!) twice a day to clean out scabs. It wasn’t pretty, but it was pretty fascinating. I’d look in the sink, see all the blood, and wonder how I was still alive. But the Neti Pot actually worked and still does. Chad said it didn’t work before because my sinuses were blocked, so the water (or medicine spray or whatever) couldn’t actually get where it needed to go.

This is when I still couldn’t breathe and felt like Voldemort.

Within six weeks, I was pretty much back to normal–except way, way better. I could actually breathe. Wow, I thought, is this how much air regular people get? No wonder everyone is so damn happy. It’s oxygen. Six months post-surgery, I haven’t had a single infection, just one cold that kind of hung on. And if all this air and lack of infections is any indication of how things will go in the future–I’ll take it. The last time I saw Chad, I told him I was so grateful to finally have–

“An answer,” he said.

I don’t know why life works like this, why you can struggle with something for twenty years, do everything you know to do, and then one day–a miracle. I don’t know what finally makes the stars align, why God has the need to be so mysterious about all of his ways. This week, or the last twenty years rather, I’ve been working overtime to manage my emotions, not be overwhelmed by life, and find an answer to this thing called suffering. Of course, some days it feels like I’ve tried everything, that things will never look different no matter how many mornings present themselves. But tonight I’m reminded that healings happen step by step and often just when we’re about to give up. Perhaps this is the way we learn to hope–and therefore–breathe again.

Quotes from CoCo (Marcus)

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We always have more support than we realize.

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