A Lighthouse (Blog #343)

Now that my dad’s back from the hospital and is on a strict healthy-living plan, my family owns a new set of bathroom scales. (They’re the fancy kind with a digital readout, so try not to be jealous.) Y’all, if there’s anything positive about being chronically sick and having little to no appetite, it’s weight loss. This afternoon I used the new scales and found out that I’m lighter than I’ve been in four years. I’m thrilled, of course, but this news came as a complete shock. I mean, in terms of diet, I haven’t even been trying lately. I’ve been eating toast with butter and high-fructose-corn-syrup jelly for breakfast for weeks now. All those years of trying-trying-trying, and now that I’ve practically given up caring, the pounds are just sliding off. Go figure. Apparently all it takes is two rounds of influenza.

Uh–count your blessings?

Physically, I’m still worn out, but it could be a lot worse. Today I rallied long enough to do some paperwork, and I’m thinking I may get out of the house before the weekend is over. Also, I took a shower. Y’all, I hate that I consider this bragging–a little paperwork and a hot bath–but I do. God, there’s nothing like the flu on top of a chronic sinus infection to seriously lower your standards and dramatically shift what ranks as an accomplishment in your life. Hey, everyone, you better sit down for this–I bathed.

Emotionally, I have less to offer than I do physically. Yesterday I got some bloodwork back from my doctor, and today I got a message from her about it. She said my CBC results were normal and that my immunology results (which came back as “in range”) would need to be discussed with my immunologist. I’m assuming she said this because he’s the one who ordered the tests and he’s also the specialist–for a reason. At the same time, I hate having to wait an entire month in order to get any explanation at all. Lately my health feels like one of those rush-hour traffic jams caused by heavy construction or a five-car pile-up–like I’m going nowhere fast. It’s so frustrating.

If you’ve never felt this way, it’s exhausting. I don’t recommend it.

Don’t let anyone scare you straight.

I guess I’ve been exhausted for a while now. Some days are worse than others, but I’m honestly worn out by life. It feels like the universe has wadded me up and is running me back and forth across a washboard. I’ve talked to my therapist a lot about this, and recently she said, “Marcus, what are the two things I always tell you? First, don’t let anyone scare you straight. Second, whenever we are the most worn out, the most tested, that’s when something good comes along.” Then she added, “I can’t say this about everyone, but I never worry about you. I’ve never worried about you. I know something good is coming.”

Of course, I hope she’s right. The logical part of me realizes this storm can’t last forever. Still, there are days when it takes all the strength I have and then some to stay above water. On difficult days, I can’t tell you what a difference it makes to know there’s someone in your corner who isn’t judging you, someone who is believing in you and rooting you on. Whether it’s a therapist, a friend, or a family member, I think we all need that–a lighthouse–someone who stands strong in the midst of a storm, someone who helps us find our own way home.

Quotes from CoCo (Marcus)

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We are all connected in a great mystery and made of the same strong stuff.

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Feeling Like Sweet Tamarind Looks (Blog #340)

Yesterday I was worn out. This morning I woke up sick (sicker than I have been lately), and things have gotten worse as the day has progressed. (The day has progressed, I have regressed.) I’m assuming it’s a sinus infection. Unless it’s the flu again (that would seriously suck), it’s almost always a sinus infection, and–at least in my mind–I’ve been fighting a sinus infection for one week shy of five months now. Granted, it backs off now and then, but I haven’t felt like myself since the beginning of last October.

As the Post-It Note in the above photo communicates, I am over this.

This afternoon and again this evening I got out of the house to buy kimchi, since rubbing fermented cabbage juice on the inside of my nostrils is the only thing I’ve tried in the last five months that has seemed to make a remarkable and sometimes-quick difference. As I’ve mentioned before, it contains a specific strand of bacteria that is useful in fighting sinus infections, but the problem is that the bacteria doesn’t show up in every jar, or–if it does–can die off before the product itself reaches its expiration date. So it’s a crap shoot.

My search for kimchi this evening sent me, once again, to the Asian food market, which is basically like one big meat locker. I mean, it’s freezing. Even the check-out lady had a coat on tonight. Personally, I think they should turn the heater on, especially if they want people spend some time there. You know, get comfortable, look around. Of course, the heat would probably make the place smell terrible, since they have all that raw fish in there. But I digress. Tonight I noticed a new product on the shelves–next to the kimchi. It’s called sweet tamarind, and apparently it’s a fruit. I took a picture of it, since it looks like I feel.

Like poop.

Now this post is already longer than I intended. After going to the Asian food market, I stopped by to see my dad in the hospital. They are talking about doing his heart catheterization tomorrow. Dad said, “Marcus, you’ve got to take care of you. I’m here taking care of me, and you’ve got to take care of you. Go home. Get some rest.” So that’s what I’m about to do, get some rest. Mostly I’m trying to “hang in there.” Not that I have much choice in the matter, but I honestly don’t mind being sick now and then. But I’m tired of being generally sick then getting really sick every few weeks. (That’s my gripe, Lord. What’s yours?) In short, my emotional reserves are low. Still, I see the immunologist four weeks from tomorrow, and surely I can stick things out for another month. After all, I’ve come this far.

Quotes from CoCo (Marcus)

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No one dances completely alone.

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Somewhere In Between (Blog #324)

Last night I slept for twelve hours straight. When I woke up I had beans, rice, and cornbread for breakfast, then went back to sleep for four additional hours. (I imagine this must be terribly interesting to read about.) I understand that I’m sick, but I’m not sure where all my energy has gone. After breakfast, before my nap, I read ten pages in a book, and it felt like running a marathon. Now I’m propped up in a chair in the living room, proud of myself for being semi-vertical. In terms of flu symptoms, my throat is significantly less sore today.

So that’s something.

Almost three months ago I started practicing chi kung every day, for anywhere from fifteen to forty-five minutes a day. When the flu hit, I think I was at eighty days in a row. In order to “not quit,” I’ve been doing a two-minute chi kung routine this week. It’s an actual thing, basically a “when all else fails” option. I’ve been thinking of it like a placeholder, like, Don’t worry–I’ll be back. Well, I’m pretty sure there was a day earlier this week when I didn’t do chi kung at all. This week is kind of a blur, but I’ve been practicing at night, and I think there was an evening when I simply passed out after dinner without practicing.

This may sound silly, and I realize nobody else gives a shit, but the missed routine was a letdown. Just like blogging every day, I’ve worked hard to do chi kung every day. I’ve been really dedicated. It means something to me. I plan to get back with it, but now there’s a certain enthusiasm that’s been lost. I’m sure it’s my all-or-nothing thinking, but I’m not quite as proud to say, “I do this ALMOST every day.”

When I forgot about chi kung a couple days ago, I thought, What if I forgot to blog too? That thought really scared me. Of all the habits and routines I’ve had in my life, this is the one to which I’m most faithful. At least until I get to the one-year mark (and I don’t know what I’ll do once I get there), I can’t imagine skipping. If I did, talk about a letdown. Why I’ve attached so much meaning and importance to this project, I can’t exactly say. It’s certainly not about money. More than likely, it has to do with character, with making a promise to myself and keeping it. That’s probably it. Almost to the one-year mark, I can tell you that something happens when you keep showing up for yourself day after day, even when you don’t feel well. It’s like you start to trust yourself in a different way. It’s like, no matter what, you know you’re going to be there for you.

I hope I don’t miss a day with the blog, but speaking from my experience with chi kung, I know there’s grace available if I do fall off the wagon. I can just get back on again. Plus I’m learning that there’s value in doing some things “almost” every day. Not everything in life has to be all-or-nothing. Most things, in fact, are somewhere in between. That does seem to be where I keep finding myself, somewhere in between all and nothing.

Quotes from CoCo (Marcus)

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Help is always on the way.

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We Don’t Get to Choose Our Winters (Blog #323)

I’ve officially had enough. I’ve had the flu for six days, my parents have both had it longer, and everybody is over it. And yet, like the unwelcome houseguest that it is, it continues to linger. I’ve spent most of the last twenty-two hours sleeping. I fell asleep at nine-thirty last night after posting the blog and slept until after noon today, waking up only twice, once to eat and take some medication, once to use the restroom. Today I woke up for breakfast then immediately went back to bed. This is apparently my new routine–eat, sleep, eat, sleep some more.

When I am awake, I’m fully aware of my aching body–my aching hips, my aching throat, my aching eyeballs. I’m also fully aware that every body part I possess is capable of sweating, even my kneecaps. My bed sheets are beyond gross. Much like the t-shirt I wore for five days before I showered yesterday, they’re covered in sweat, snot, and dead skin. They look like a dandruff commercial. It’s disgusting.

Much like my physical state, my emotional one continues to drag. I’m irritable, short. I’m finding myself less than gracious. I’m ready to go back to sleep again, to wake up and find it springtime. When will this winter be over?

I’ve been thinking today about my strong tendency to fantasize a better future. I often imagine that “as soon as this winter is over, everything will be perfect.” I do this with my body too, imagine a time when I won’t have any problems. And yet each season has its challenges, just as each body does. My dad has benign essential tremors. Sometimes his hands shake so bad he can’t hold a cup of coffee. Grandpa had them too. (He doesn’t anymore because he’s dead.) I’ve noticed the last few years that sometimes my hands shake too. Not awful, but they do. I’ve been hyper focused on the tremors lately. I’d like them to go away. Still, they may be something I carry with me the rest of my life.

It seems we don’t get to choose our traveling companions, those illnesses and challenges that often shape us and make us who we are. We don’t get to choose our winters, or for that matter, how long they last. Rather, each day we have to choice to continue this journey, to set out once again on the unknown path regardless of whether the wind blows with us or against us, to put one foot in front of the other.

Quotes from CoCo (Marcus)

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In other words, there's always SOMETHING else to improve or work on. Therefore, striving for perfection is not only frustrating, it's also technically impossible.

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Taking Good Care (Blog #322)

Today marks day five of the flu for me. My eyeballs still hurt, and my throat is more sore than yesterday. When I eat, it’s like swallowing gravel. That being said, I “may” be getting better. I’m not nauseated. I have more energy than I did yesterday. I took out the trash this evening.

The big news, however, is that I washed myself. That’s right, I took a shower. I even shaved. I don’t mind saying it wasn’t easy and took all the effort I could muster. It felt like a competitive sport. As a matter of fact, since I ran out of hot water mid-shave, I should probably get a medal in the Winter Olympics.

Marcus Coker scores the bronze in bathing!

It’s amazing to me how quickly a person’s standards can change. Like, taking a shower really does feel like a big accomplishment to me. A week ago I wouldn’t have thought anything about it, but a week ago I wasn’t flat on my back with a five-day flu either.

Now I’m worn out. Exhausted. The internet is slow, and my patience is gone. (Way gone.) I feel like crying. Or screaming. So many other things in my world aren’t working, and now this. Sometimes life is too much. I probably need a nap.

When I told my therapist I wouldn’t be in this week because I had the flu, she said, “Take good care.” I appreciate the adjective, good. It reminds me to be especially careful with myself, to adjust to my moment-to-moment needs. To me this means that it’s okay that one day taking a shower isn’t a major undertaking and the next day it is. There’s no point in trying to impose yesterday’s standard upon today because they’re two different days, two different standards. As I see it, taking good care means doing the best you can right here, right now. And in this moment, taking good care for me means wrapping this up, taking a nap, and being more than okay with that.

Quotes from CoCo (Marcus)

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We’re all made of the same stuff.

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This Ship (Blog #321)

I’ve spent most of the last twenty-four hours sleeping and breathing through my mouth. Now my lips are chapped, my tongue is raw, and my throat hurts. When I got up this afternoon to eat something, I became so nauseated, I made my way to the bathroom and collapsed on the floor beside the toilet, ready for anything. Now that part is better. Maybe it was the plague, maybe it was the medication, maybe I just needed to eat something. Regardless, my eyeballs still hurt. Who even knew that was possible? Hell hath no furry like the flu.

I’ve been thinking how grateful I am for central heat and air. And Ibuprofen. A hundred years ago this could have been much more miserable. Granted, they did have opiates, but I think I would have died back then. I can’t imagine living through The Grapes of Wrath, especially with “the influenza.” I’m just too delicate. I need indoor plumbing, a thermostat, and–while we’re at it–a microwave.

I guess it’s what you get used to. Earlier today I was thinking that having the flu has become my “new normal.” It’s tough for me to imagine things being any different, things improving. That’s how pervasive this is. I just feel so–deflated. I’m not trying to be dramatic. (I really don’t have to try.) The fact that I’ve been sick for the last four months, I’m sure, is the main reason why getting the flu has really let the wind out of my sails. As the saying goes, when it rains–it pours.

I’m trying to trust that one day this storm will come to an end. I know my body has successfully navigated difficult waters before, so surely it can do it again. Surely this ship wasn’t made for sinking.

Quotes from CoCo (Marcus)

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If life can create a problem, it can also provide an answer.

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A Salchow Before Breakfast (Blog #320)

The flu is disgusting. Coughing, sneezing, mucus everywhere. I don’t remember the last time I felt this gross. Well, yes I do. It was the last time I had the flu–a little over a year ago in New York City–on Christmas Day. Talk about miserable. And having to travel home when you’re sick–that’s the worst. The plane starts to descend, and your head feels like it’s going to pop. So at least now I’m not on a plane. That’s good. And last night my body didn’t do the hot/cold thing, which means I slept better. Still, everything hurts and I feel like my power cord’s been yanked from the wall.

As Grandma used to say, “I am not a well woman.”

I’ve been thinking that maybe a shower would help. I don’t remember the last time I took a shower. Or shaved. Still, showering and shaving sound awfully challenging at the moment. Of course, it doesn’t help that the Winter Olympics are on right now. Like, Adam Rippon can land a triple-axle-salchow-double-loop before breakfast, and this homo can barely pick up his toothbrush. This is why you should never compare yourself to others.

Yesterday all my friends on Facebook told me about their terrible experiences with Tamiflu. Despite these warnings, I started taking it. I spoke to my internist about it, and she said she thought it would help. It’s two pills a day for five days, and I’m currently three pills in. Thankfully, my insurance paid for all of it. So far I’m not nauseated, bleeding from my nose, hallucinating, or having nightmares. I don’t feel like killing myself or anyone else. But this could all change, of course, so watch out. But seriously, as I sit here now, my appetite is returning, so maybe the pills are doing some good. Tamiflu is supposed to be most effective when taken during the first two days of having the flu, and I started it pretty much within that window.

As always, I’ll let you know how it goes.

This is about all I have in me today, just under 400 words. I’ve been staring at the screen for the last thirty minutes trying to come up with a “life lesson,” but I got nothing. Some days I think it’s enough to simply be gross, to be sick, to not do a salchow before breakfast.

Quotes from CoCo (Marcus)

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What are you really running away from?

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Everything Stops (Blog #319)

Shit, the flu.

Last night I took Mom and me to a walk-in clinic. We both have the flu. The doctor said I was probably “on the front end of it” and Mom was probably in the middle of it. Later Dad said he hoped that meant he was at the end of it, since he got it first. Anyway, we’re a fine crew around here. Mom and Dad are currently watching Days of Our Lives–hacking their way through every minute of it–and I’m laid up in bed.

Today is definitely worse than yesterday. I spent the night cold and hot, cold and hot, and now am starting to get congested. It hurts to stand up. It hurts to think. The doctor last night wrote me a prescription for Tamiflu, so I may pick that up shortly. Well, my aunt said she would. Either way, I have mixed feelings about it. I don’t always do well with pills and side effects. Then again, I clearly don’t do well with the flu either.

One upside to being sick is that I don’t have much of an appetite. In other words, I already feel skinnier! (Gay guys think about their waistlines constantly, Mom.) My therapist had the flu recently, and as she said, “I’m only two more viruses away from fitting into my favorite jeans.”

I’ve been thinking about how everything stops when you get sick like this. Yesterday I blogged but didn’t journal, something I’ve done every day for the last six months. Likewise, my chi kung session, which is normally thirty minutes, got cut to five minutes. Today I’d planned to do some marketing work, then get up early tomorrow to interview someone on the phone for a writing project. But all of that is coming to a halt for now. My body simply can’t. (Stop, stop, stop.) Instead, I’ll probably finish this blog and watch a movie, maybe try eating a piece of fruit, even though chewing feels like it should be an Olympic sport at the moment.

I’m not exactly sure how to wrap this up. My brain has stopped too.

Shit, the flu.

Quotes from CoCo (Marcus)

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Abundance comes in many forms.

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For Anyone Who Suffers (Blog #318)

Last night I drove to Fayetteville to have dinner with friends. I was running late, but that’s usual. They expect that. At least they tolerate it. Hold on, back up. I drove almost to Fayetteville. There was a wreck several miles outside of town. It was raining, and the temperature was below freezing. That must have been it. I didn’t see the wreck, but I heard later it was bad. Really bad. A multiple-car pile up.

For about an hour, I didn’t move an inch. After that, things were slow going. Eventually, I got to a point on the interstate where policemen usually hide and clock people’s speed. A policeman, standing in the rain, was directing everyone to turn around. “It’s completely blocked,” he said. “Go back to Winslow and take the business route.” So that’s what I started to do, but in less than a mile, my car, Tom Collins, hit a small patch of ice on a bridge. I was okay, but it was enough for me to get the message. I called my friends and said, “I just can’t make it tonight.”

Before much longer, the check-engine light on Tom Collins started blinking. I thought, Perfect. Stopping at the nearest gas station, I Googled the problem and found out it could be any number of things. One post said, “Don’t drive more than a few miles, and don’t drive at highway speeds.” Twelve miles from home and pulling back onto the highway, I once again thought, Perfect.

I made it home.

In an effort to stop worrying about potential car-repair costs, I buried my face in a book last night, then took to Netflix and watched a documentary called The Truth About Alcohol. Don’t watch it. They say alcohol is bad for you.

This morning I woke up sick. Bad sick. Like could be the big, bad f-word sick. Mom and Dad have been hacking the last few days, and Mom said her temperature was up last night. When I woke up at seven-thirty (five hours ago), I was freezing. When I woke up four hours later, hot. I’m not hacking, but I’m wiped out, super icky. Just before I started this post I sat on the bathroom floor and dry-heaved into the toilet.

I’m glad we can talk about these things.

Now I’m back in bed, vertical, and blogging from my phone, punching out one letter at a time with my thumbs. I’d intended to make this a three-word post (shit, the flu), but I couldn’t help myself. I hope I don’t come across as some sort of blogging martyr. This is how I process things.

That line above–I couldn’t help myself. That’s probably one of the most frustrating feelings in the whole world, to feel like you’ve done everything you can to get your life together but that everything, including you, keeps falling apart and all you can do about it is lie in bed and wait for the night to descend.

I’m telling myself I could have it worse. Way worse. Like those people in the pile up last night worse. I have friends who were stuck in that traffic for three hours, so it must have been ugly. I do think that perspective helps a little. At the same time, perspective has never taken my immediate pain away. Perspective doesn’t help me stand up without feeling woozy or help my head stop throbbing. Still, perhaps it does help me find compassion for both myself and others, for anyone who suffers.

Quotes from CoCo (Marcus)

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You’re exactly where you need to be.

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