Don’t Suffer Needlessly (Blog #1072)

Currently it’s 10 in the evening, and I feel like a Bradford Pear tree is blooming inside my sinuses. I’m congested and can’t stop sneezing. I’m trying–trying–to not make this a national emergency. Yesterday I saw my ENT, and he reminded me that people–mere mortals like myself–get sick, get sick with sinus infections that typically last one or two months. “Whenever you get a sinus infection, the cilia inside your nasal cavities STOPS moving for six weeks minimum,” he said. Which means the mucus inside your head (or my head as the case may be) is tougher to move OUT.

Geez. Fine time for those little guys to go on strike.

The good news is that my ENT said he’s been having “really good results” with a specially compounded antibiotic/steroid mix that can be added to one’s nasal rinse. “Nose sprays only reach so far into your sinus cavities,” he said, “so nasal rinses are better.” And whereas I don’t love the idea of using antibiotics and steroids, I like that they wouldn’t be directly affecting my gut or overall body. Just my sinuses. Plus, I’ve given alternative treatments a good go (God knows I have), but, despite some spectacular results, they aren’t consistently cutting the mustard. So I’m willing to try something new.

My body continues to be a laboratory.

Along the lines of making efforts to heal, this morning I had an EDG (esophagogastroduodenoscopy) to scope out (get it?) the root cause of my acid reflux. Y’all, I don’t mind saying I totally enjoyed the drugs the anesthesiologist used to knock me out. Best sleep I’ve had all year. Alas, they said I couldn’t take any home with me. They also said I had a “small” hiatal hernia, basically an open door in my intestinal system that’s allowing certain fluids to sneak out and roam around where they shouldn’t be (in my throat).

At one time I would have been bothered by this information. Like, I’m falling apart. But more and more I’m convinced that my body can heal, or at the very least handle, all sorts of challenges. Plus, I know I’m getting good help. In a couple weeks, after the doctor gets some biopsy results back (“just to make sure there aren’t other contributing factors”), I’ll meet with him and get a game plan. After over a year and a half of NOT knowing what’s been causing all my intestinal distress, I’m like, bring it on.

More and more I think the more information I have, the better. This is my approach not only to my physical health, but also to my mental and emotional health (which I’m separating less and less from my physical health these days). My therapist says my dedication to understanding myself is “remarkable,” but–I don’t know–I’m just determined to unearth what makes me tick, what makes us all tick. And although I don’t claim to have all the answers, I’m convinced that if we’re overwhelmed by emotions, limiting beliefs, dysfunctional relationships (bad boundaries), and even health concerns, there’s a reason. Even science promotes this idea, solidly linking childhood trauma to heart disease and a number of other physical problems. Google the Adverse Childhood Experiences (ACEs) quiz.

As Caroline Myss says, “Your biography becomes your biology.”

For me, it’s natural to dig into my interior, although I know many people run from theirs. I mean, this journey isn’t for everyone. At the same time, you’re the one you live with day-in and day-out your entire life, so wouldn’t it behoove you to “know thyself,” like thyself, and even love thyself? Maybe that’s part of the reason we attempt to run from ourselves. (Which is, of course, a ridiculous and impossible notion.) We’re afraid of what we’ll find. But in my experience, even our scariest memories, emotions, and pains, when met with gentle compassion and curiosity, have something good to teach us. And leave us better on the other side.

Once a friend encouraged me to “sum up” what I’ve learned from my therapeutic and blogging journey. And whereas I get where they were coming from, it’s not really my style. For one thing, although I know bulleted lists are convenient, I personally almost always scan through them and think, I already know all that. Additionally, from the beginning I’ve said that I know my blogs are long and don’t have subheadings. Fine. This is on purpose. My invitation has been and continues to be–slow down, read a story, see if you can glean something from it.

Because some things, like yourself, are worth slowing down for. Are worth really thinking about.

Recently my therapist said that it’s never made sense to her that “someone will spend $80,000 on a car or botox” but not spend a fraction of that money on understanding themselves, on paying a professional for insights into their thoughts, behaviors, and relationships. Amen. So if I WERE to make a list, it would certainly include–seek help, get your ass in therapy (or do something useful that resonates with you), and don’t stop searching until you have some damn answers. Until you find something that works. In other words, don’t suffer needlessly. Not with your outsides. Not with your insides.

Quotes from CoCo (Marcus)

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We all need to feel alive.

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On Being a Guinea Pig (Blog #1061)

This evening I’ve been thinking about being a guinea pig. What I mean is that’s how I see myself, as a walking experiment. For example, over the last few years I’ve tried a number of things to help with a number of things: body odor, acid reflux, headaches, you name it. And whereas some of the things I’ve tried have been conventional, many of them have not. Not that I’m absolutely sold on home remedies and weird shit (because a lot of it is bogus), but–let’s face it–conventional approaches don’t always get the job done. I can’t tell you the number of college-educated doctors I’ve asked about my issues, yes, to be helped some, but also to only be told, “You’re an enigma” or “You’ve got me there.”

Used to, these sorts of answers would cause me to despair. Like, it’s hopeless. I’m fucked. More and more, I’m not bothered when someone–even a professional–says they don’t know what to do. Why? Because that lets me know THEY’RE not the one I’m looking for, the one with the answer. And I don’t begrudge them for this. After all, it’s good to know where NOT to look (or whom NOT to date), and just because someone doesn’t have every piece of a puzzle doesn’t mean they don’t have a piece of it. Dr. Johan Boswinkel said, “I believe that truth has 144 sides.” To me this means that we can’t expect one person to be able to solve all our problems, whether that one person is a doctor, a therapist, or even us. It takes a village to see the entire picture.

To solve the entire problem.

Along these lines, for example, I’ve made huge strides with sinus infections thanks to a blog I found online. Still, last week I asked my primary care physician about ways to deal with post nasal drip, and next week I have an appointment with the ENT who performed my sinus surgery three years ago (which helped with, well, breathing) to ask them the same question. There was a time in my life I would have only sought out one opinion, but now I just don’t believe that’s enough.

How many opinions are enough? However many it takes to get the answer you want. This is what I mean by being a guinea pig. I’m so determined to heal–whatever that means–that I’m willing to ask almost anyone, to try almost anything. Rather than suffer. I don’t know. There’s just something in me that keeps hoping, keeps insisting that life can be better. Better than it has been. Better than it is. Not that the past and present have been completely awful (all of the time), but I’m convinced there’s something more. Not out there, but in here. Inside of me.

I’m talking about potential.

Fortunately, my keep-hoping, never-quit, good-God-I-need-an-answer-right-now-damn-it-because-I’m-exhausted attitude has started to pay off. Over the last few months my body has begun to heal and to change thanks to upper cervical care. Thanks to the new therapist I’ve started seeing (in addition to my regular therapist and whose methods I intend to discuss more fully soon) and the myofascial release practitioner I mentioned last week, I’ve processed and let go of emotions that have been hidden in my body for decades. Ugh. It’s been said that emotions buried alive never die, and I’ve found this to be true. Just because you stuff something down doesn’t mean it’s not there. Sooner or later, all our feelings must be felt, expressed, and assimilated. Otherwise they’ll simply show up as our neuroses (anxieties, fears, compulsions, addictions) or, perhaps worse, our dis-eases (pains, ailments).

Honestly, my discomforts and diseases over the years have been the main reason I’ve worked so hard to “get better” mentally, emotionally, physically, and spiritually. (I believe you can’t separate the four.) My Reiki teacher says our bodies are our sounding boards, meaning they let us know when something in our life needs attention or is out of balance. Of course, achieving balance is a delicate undertaking and seems to require a lifelong commitment. So be it. Perhaps this is why we’ve been given life in the first place, so that both we as individuals and we as a collective can come to a greater sense of harmony.

Perhaps.

Getting back to the idea that it takes a village, when I think about the healing I’ve experienced over the last few years and even the last few months, I’d like to be clear. As much as I love my therapist and wouldn’t be without her, I also wouldn’t be without this new therapist I’m seeing. Nor would I be without my primary care physician, my ENT, or my myofascial release practitioner. Nor would I be without, well, myself, since I’ve figured out a number of things no one on my “healing team” has been able to. Not that I’m so fabulous. For every piece I’ve figured out, I have dozens of websites, books, and YouTube videos (and their producers) to credit.

So. We’re all in this together.

All this to say that if you’re struggling with something, if you’re looking for answers, if you’re, well, human, hang in there. It’s a big universe (with a big internet), and you’ve got more options now than ever. Granted, there are certain things we’re just “stuck with” for life (and we all have to get off this planet somehow), but more and more I believe our bodies and souls are capable of more than we give them credit for, certainly more than we’ve been led to believe. So keep trying, keep searching. Until you find your Self. Keep being a guinea pig until you find Balance. When it comes to others, especially experts, take them with a grain of salt. They are, after all, only human. No one knows everything. And only you get to say what your potential is.

Quotes from CoCo (Marcus)

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There's a wisdom underneath everything that moves us and even the planets at its own infallible pace. We forget that we too are like the planets, part of a larger universe that is always proceeding one step at time, never in the wrong place, everything always right where it belongs.

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Learning to Breathe Again (Blog #151)

For the last hour I’ve been scrolling and scrolling through old photos hoping to come up with a blog idea. However, it’s been a long day, I’m exhausted, and all I can think is, No, that won’t work. But I told a good friend today that probably the best thing I’ve ever done–in my entire life–was to have sinus surgery, so when I saw pictures from the surgery, I thought, That might work. (One hour, and I’ve got a solid maybe.) This–it would appear–is the life of a writer. Doesn’t it sound glorious? Sign up now and you can live with your parents too!

But I digress.

For nearly two decades, I had multiple sinus infections a year. I know I’ve written about this before, but it was hell. For the longest time, I’d have an infection–marked by fatigue, colorful snot, and sometimes fever–once every six to twelve weeks. Maybe more often than that. At some point, I stopped counting. But it seems as if I have just as many memories being sick as I do being well. I was sick in high school the night Mom and Dee-Anne and I drove to Little Rock to see Les Mis. I could barely put my clothes on. I was sick probably half the times I went to Houston for an annual Lindy Hop convention. I was sick almost every Thanksgiving.

In high school I used to think that God was punishing me for–I don’t know–being a straight A student. I’d pray–and pray–and pray–and still wake up coughing up blood-colored snot. Before I knew what to call it, I’d tell my family, “I feel weak,” and my Dad would say that I was burning the candle at both ends. I’d think, I just need to slow down.

Over the years, I tried everything I knew to try. I took a ton of antibiotics, swore them off, took a ton more–with steroids. Had an allergic reaction, whatever. Alternatively, I ordered things off television, off websites. I saw a naturopathic doctor who suggested herbs for my immune system. I took so many herbs, drank so many teas. I looked into the emotional connection to sinus infections (crying inside). None of it solved the problem, but I did learn a lot. In fact, having constant sinus infections is one of the things that led me to Reiki, Chi Kung, and meditation. Again, none of it fixed them problem, but they’ve all added a multitude of benefits to my emotional, physical, and spiritual life. So I don’t consider everything a waste.

Except maybe the Neti Pot, that contraption you use to pour water in one nostril until it runs out the other. If I had a nickel for every time someone said, “Have you tried a Neti Pot?” I’d be set. YES, I have tried a fucking Neti Pot–it didn’t work.

Whenever I’d get sick–again–I’d get overwhelmed and think, I can’t do this anymore. Of course, I did, since I didn’t have much choice in the matter. Plus, things always look different in the morning. Which morning, I can’t say. But go through enough mornings, and things will look different. For me, I guess things started to turn around a few years ago when my primary care doctor suggested seeing an ENT (ear, nose, and throat doctor). Now there’s an idea! So that’s what I did–locally–and the doctor explained that 1) my septum was blocked, a lot, and 2) my sinuses weren’t draining. Basically, I always had an infection “on deck.” His recommendation? Surgery, to the tune of approximately $14,000 dollars.

Well, shit. I don’t have insurance.

Or $14,000.

Fast forward to just before this last Christmas, and I was living in Fayetteville, about to travel to New York City, and sick–again. So I called my ENT’s office to finally do something about it. I had insurance, and even though I had a high deductible, I didn’t care. I had to do something. Well, no one answered the phone. I’m sure you’ve been on hold before. So I hung up and called a clinic in Rogers (Mercy Ear, Nose, and Throat).

“Can you come next week?” they asked.

“Ugh. I’ll be out-of-state next week.”

“What about two hours from now? Can you come then?”

“I’ll be there.”

Y’all, I hate to say this because it was twenty freaking years, but it was worth the wait. I’ve never been treated so well by an entire group of medical professionals. I don’t intend for this to become a commercial, but everyone from start to finish was amazing. (Pick up your phone and order now.) But seriously, my doctor’s name was Chad (actually Dr. Chad Putman, but I try to keep it informal on the blog), and he paid attention, asked questions, then laid out a plan–drugs first, a CT scan, then possibly surgery. “I don’t want to jump the gun,” he said. So we took it step by step, and six weeks later, I was in an operating room.

By that time, Chad had explained that my previous doctor had been correct–my nose was blocked 80 percent on one side and 90 percent on the other. Part of my sinuses weren’t draining, which meant they were constantly “smoldering.” (Isn’t this fun to talk about?) But whereas the previous doctor had suggested three procedures, Chad suggested six in order to really open everything up. The day of the surgery–February 15–he told my parents, “We’ll treat him like family.”

Uh, I know we’re family and all, but my butt is hanging out of this gown.

Surgery itself was a breeze. The anesthesiologist came in the room where I was waiting with Mom and Dad and said, “I’m going to give you a cocktail.”

I said, “I like cocktails.”

Then they wheeled me back to the operating room, moved me to a different table, and that was it. The next thing I knew, I woke up back in my room with a sling around my nose to catch the blood. Later Mom said that I was repeating myself a lot. How’d it go? God, it’s bright in there. May I have my sunglasses?

Mom and Dad took care of me for a week. Looking back, it was sort of a trial run for my living with them now. For the first several days, I couldn’t breathe through my nose at all and slept in a chair. Per Chad’s instructions, I used a Neti Pot (!) twice a day to clean out scabs. It wasn’t pretty, but it was pretty fascinating. I’d look in the sink, see all the blood, and wonder how I was still alive. But the Neti Pot actually worked and still does. Chad said it didn’t work before because my sinuses were blocked, so the water (or medicine spray or whatever) couldn’t actually get where it needed to go.

This is when I still couldn’t breathe and felt like Voldemort.

Within six weeks, I was pretty much back to normal–except way, way better. I could actually breathe. Wow, I thought, is this how much air regular people get? No wonder everyone is so damn happy. It’s oxygen. Six months post-surgery, I haven’t had a single infection, just one cold that kind of hung on. And if all this air and lack of infections is any indication of how things will go in the future–I’ll take it. The last time I saw Chad, I told him I was so grateful to finally have–

“An answer,” he said.

I don’t know why life works like this, why you can struggle with something for twenty years, do everything you know to do, and then one day–a miracle. I don’t know what finally makes the stars align, why God has the need to be so mysterious about all of his ways. This week, or the last twenty years rather, I’ve been working overtime to manage my emotions, not be overwhelmed by life, and find an answer to this thing called suffering. Of course, some days it feels like I’ve tried everything, that things will never look different no matter how many mornings present themselves. But tonight I’m reminded that healings happen step by step and often just when we’re about to give up. Perhaps this is the way we learn to hope–and therefore–breathe again.

Quotes from CoCo (Marcus)

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Storms don’t define us, they refine us.

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